Monday, May 18, 2009

Evan's Walk

This weekend I went to a fundraiser in Cincinnati Ohio in celebration of Friedreich's Ataxia Awareness Day. The fundraiser was a 3K walk/run organized by the Luebbe family. Evan Luebbe was diagnosed with FA when he was 8 years old. He is now 12 and has a much older personality. I hung out with Evan and his family this weekend and had a blast.

The event went off without a hitch because of huge support from community volunteers. This was the 5th year of this event and it showed as everything fell into place. Everyone had a great time with carnival games including a dunk tank (in which they could soak their principal), a silent auction, raffle, lunch from Outback Steakhouse, a short presentation about FA, and a magic show!

Initial estimates are that there were more than 200 walkers/runners and the event raised more than $25,000.

Thanks Luebbes, I had a lot of fun. You are truly making a difference!

Back Row: Felicia DeRosa, Greg Luebbe, Tammy Luebbe, Pamela Rasey Front Row: Graham Luebbe, Evan Luebbe, Me


Anonymous said...

Mom, Dad & I helped in Angelman awerenss by walking in Mobile's,AL.(just north of Gulf Shores & the Beach house) and I though ataxia was rare!?!?

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