Ride Philly Registration

The registration for the Philly Ride is going very well! We already have 125 participants signed up with room for many, many more. So please click the link above or visit this website: rideataxia.org/philly to register online.

For those of you coming from out of town (like me), we have reserved a block of rooms at a pretty good rate in a couple different hotels (click here for hotel information). The room blocks are almost full so call soon!

Registration for the Philly Ride ends October 18 so sign up now and start raising funds! We have reached 20% of our fundraising goal with only a few weeks remaining! I am confident that we will reach our goal! Check our progress or make a donation at the FUNDRAISING PAGE.

PS - Check out this press release about the ride.

Full Speed Ahead!

I am excited to announce that I recently became a full time employee of the Friedreich's Ataxia Research Alliance (FARA). The main purpose of my job is to expand Ride Ataxia with the thought that it might become a revenue stream for the organization with rides all over the country. I could not be more excited about this opportunity to continue pushing the limits and seek my passion full time!

My first week at work was a benchmark week for me. I spent the week in Tampa with Juliann Green (FARA development officer) and Jennifer Farmer (FARA executive director) and we had a crazy week full of presentations and meetings capped off by the taping of a television show (NBC Daytime) which aired in 99 different markets all across the country!

I can't wait to see what the future holds for me personally as we work together to raise awareness and research funds for this important cause. The cure is out there...

USF Symposium

Hi Folks,

I realize its been a while. Check out this article about the FARA - USF symposium last week: http://hscweb3.hsc.usf.edu/health/now/?p=7640