Friday, October 02, 2009

Friendly Reminder

About FARA:
Friedreich's Ataxia is a genetic, progressive neuromuscular condition that affects all muscle coordination from the toes to the fingertips. FA has side effects such as scoliosis, diabetes and serious heart complications. The progressive loss of coordination and muscle strength leads to motor incapacitation and the full-time use of a wheelchair. Most young people diagnosed with FA require mobility aids such as a cane, walker, or wheelchair by their teens or early 20s. The Friedreich's Ataxia Research Alliance (FARA) is supporting promising research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms. http://curefa.org.

About Ride Ataxia:
Kyle Bryant founded Ride Ataxia in 2007 with a 2,500 mile ride from San Diego, CA to Memphis, TN. Since then Ride Ataxia has become a national powerhouse travelling 3,300 miles in the past three years, raising invaluable ataxia awareness and bringing together $700,000 in research funds. With Kyle Bryant as the Program Director, Ride Ataxia now operates as a FARA program and in 2010 Ride Ataxia will feature challenging and family friendly rides in Sacramento, CA, San Diego, CA and Philadelphia, PA. The event will expand to Dallas, Tampa, Atlanta, Boston, Chicago, St. Louis, Seattle and beyond in the near future.

The mission of Ride Ataxia is to Educate the public about ataxia by drawing attention through acts of physical endurance, Enable the advancement of ataxia research through collaborative financial support and Empower Ataxians by inspiring, motivating and providing opportunities to develop physical and mental strength. http://rideataxia.org.

1 comment:

Spinner said...

I love the mission, it all sounds good to me!