Two dedicated Ride Ataxia teammates share their thoughts...
Thursday, December 17, 2009
Friday, December 04, 2009
Progression: A balancing act.
FA is a progressive disease which means it gets worse over time. This makes things especially challenging because there is a constant balancing act between pushing oneself in order to maximize one's physical abilities and giving in to reason and comfort.
For example, I am in a transition period between walking and cruising in my wheelchair. Whenever I leave the house I have to assess the situation and decide whether or not things will be easier with the wheels. I have to consider the terrain I will be in, the time frame of whatever I am doing, the people that will be there, the activities that will take place, how I am feeling at the time etc.
After taking all these things into consideration I place them on either side of a scale. On one side of the scale are all the reasons why things might be easier with the wheels. On the other side of the scale is one thing: The fact that the more comfortable I get in the chair, the more time I will spend there.
to be continued...
For example, I am in a transition period between walking and cruising in my wheelchair. Whenever I leave the house I have to assess the situation and decide whether or not things will be easier with the wheels. I have to consider the terrain I will be in, the time frame of whatever I am doing, the people that will be there, the activities that will take place, how I am feeling at the time etc.
After taking all these things into consideration I place them on either side of a scale. On one side of the scale are all the reasons why things might be easier with the wheels. On the other side of the scale is one thing: The fact that the more comfortable I get in the chair, the more time I will spend there.
to be continued...
Monday, November 23, 2009
FARA West
The FARA West Open House was yesterday and we had a huge turnout! We had 50-60 people in my 900 square foot house. We are all glad it was not raining because most of the people hung out outside where there was enough room.
The crowd consisted of our dedicated supporters from my home community, Lake Of The Pines. There was also a strong showing from the Krill clan, see you guys Wednesday night! And as always there was a strong showing from my aunts, uncles and cousins. Uncle Steve even showed up. He drove all the way down from Libby Montana and I had no idea he was going to be here until he walked up the driveway!
It is evident that FARA has huge support in the Sacramento area and the entire west coast so lets get to work and raise some funds for research!
The crowd consisted of our dedicated supporters from my home community, Lake Of The Pines. There was also a strong showing from the Krill clan, see you guys Wednesday night! And as always there was a strong showing from my aunts, uncles and cousins. Uncle Steve even showed up. He drove all the way down from Libby Montana and I had no idea he was going to be here until he walked up the driveway!
It is evident that FARA has huge support in the Sacramento area and the entire west coast so lets get to work and raise some funds for research!
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